Austin Jones, born with a rare disease in 1996, was given a devastating prognosis—his life expectancy was only two years. But fate had different plans. Now, at 27, Austin is not only alive but also a proud father of newborn twins, a loving husband, and a successful business owner. He considers his condition to be the “biggest blessing possible.”
Diagnosed with spinal muscular atrophy with respiratory distress (SMARD) in Michigan, doctors informed Austin’s parents that he wouldn’t survive past the age of two. SMARD causes muscle weakness, paralysis, and respiratory failure, with a life expectancy of less than 13 months.
Against all odds, Austin surpassed the predicted two-year timeline. Since going into respiratory failure in 2003, he has relied on a ventilator and a wheelchair. However, rather than seeing this as a setback, Austin views his condition as a source of inspiration. On his company’s website, Live Intrepid, he explains, “It’s the biggest blessing possible. It’s given me a life and a perspective I could have never imagined.”
Live Intrepid, Austin’s clothing company, embodies his philosophy of living fearlessly and adventurously. He believes life is too short to be afraid and encourages others to seize every opportunity. The company also aims to raise awareness and funds for SMARD, a condition that affects only an estimated 100 people worldwide. Austin’s mission is crucial.
Throughout his journey, Austin has traveled to 38 states, pursuing his dreams with his closest friends and touching the lives of thousands of people. He writes, “I’ve met thousands and thousands of amazing people and hopefully changed a life or two.”
Austin’s impact extends beyond his professional achievements. In 2021, he met Muckala, a single mom caring for her three-month-old daughter, Hazel. Muckala initiated contact after seeing Austin’s image and story on social media. They quickly became inseparable, and after seven months of dating, Muckala and Hazel moved in with Austin. On August 19, 2023, they exchanged vows, just in time for the arrival of their twins, Penelope and Poppy, born on September 23.
Austin’s older brother, Jason, shared a TikTok video of their joyous wedding day, showing Austin dancing in his wheelchair with their mom. This moment defied the notion that everything in Austin’s life would be impossible. While many viewers were touched by the heartwarming moment, some unleashed hateful comments directed at Muckala, suggesting she married Austin for his money or disability benefits.
Refusing to let negativity affect them, Austin and Muckala have stood strong, showcasing their love and happiness as proud parents to their beautiful children. They have shared numerous photos and clips, offering glimpses into their lives as dedicated and loving parents.
Despite the challenges he has faced, Austin remains an inspiration and symbol of resilience. We congratulate Austin and his family on their new additions and are confident that he will continue to inspire people worldwide with his determination to make the most of life.
